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« on: February 06, 2009, 05:29:49 AM » |
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I'm so sick of taking these meds. I feel like they are just draining the life out of me. I talked to my pdoc about helping me get off of the meds, but she just laughed at me. I'm so addicted to these things that I can't just cold turkey come off of them, so I thought she could monitor me while lowering the doses. I don't understand why she won't do this for me because if people express the desire to want to discontinue their meds, wouldn't you rather help them do it safely than have them just dangerously stop taking them on their own?
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Phyllis
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« Reply #1 on: February 06, 2009, 05:54:00 AM » |
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I know a couple of people that have gone to homeopaths. One is completely off their meds and feeling great, and the other is still on a few meds still trying to ween themselves off in conjunction with taking herbal supplements.
I think it depends on your doc and your "file". What I mean by file is your history - your highs, lows, and time of stability.
I'm pretty sure if I went in to see my pdoc and said "Lets start weening me off of this stuff" - she would start weening me off of them and see what happens. If I was starting to get squirly she would probably put me back on my proper doses. BUT... right now I am not safe in the fact that I would want to go off my meds. Yes, I LOATH taking these damn things everyday, but I'm pretty ok for now. and I don't want to ruin it. Maybe it is just the "addict" in me talking, who knows...
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Cathy
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« Reply #2 on: February 06, 2009, 07:10:45 AM » |
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High, it seems to me (and please let me know if I'm mistaken or if I should mind my own business) that you've tried a whole load of meds and none of them have made a significant difference to your symptoms - and those that did help, came with crippling side effects. Are there any new drugs left for you to try? Cos if there aren't then perhaps you could look into alternative ways of coping, I don't know much about homeopathy myself but if the drugs aren't working, it just seems like, what's the point? I agree it's far better to come off the drugs slowly and with the support of your pdoc if at all possible.
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nordicnicki
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« Reply #3 on: February 06, 2009, 08:48:30 AM » |
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your pdoc sounds an ass for laughing at you instead of helping you thats for sure.
i like the sound of the idea of weening yourself whislt trying another approach....but then as phyllis said it is all down to you history with this illness i guess as to what is best for you in the long run.......we all hate taking these things with there shit side effects and the fact that some justy dont plain work for us..........maybe if you go armed with other suggestions of things to try as well as lowering your meds your pdoc may listen
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bound and tied in emotion but still we fly.losing all my reason cause theres nothing left to blame.
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high maintenence
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« Reply #4 on: February 09, 2009, 03:04:15 PM » |
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High, it seems to me (and please let me know if I'm mistaken or if I should mind my own business) that you've tried a whole load of meds and none of them have made a significant difference to your symptoms - and those that did help, came with crippling side effects. Are there any new drugs left for you to try? Cos if there aren't then perhaps you could look into alternative ways of coping, I don't know much about homeopathy myself but if the drugs aren't working, it just seems like, what's the point? I agree it's far better to come off the drugs slowly and with the support of your pdoc if at all possible.
Exactly my point, Cathy. I've tried almost everything, but the side effects are always worse then the positive reactions that I get from the meds. I have tried to come off of them myself several times, but the withdrawals are deadly. I'm just an addict and I hate it. Yes, there are drugs that I haven't tried, but not too damn many. |
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high maintenence
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« Reply #5 on: February 09, 2009, 03:26:50 PM » |
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Nicki, you and I are alot alike as far as drug resistance goes.
Phyllis, I understand that you don't want to mess with the stability that you do have, and the truth is, I guess you could say that I'm basically okay too. I'm not doing harm to anyone or anything alarming and I'm sure that's why the doc doesn't want to help me get off of these meds.
I don't want to feel just okay. I'm figity all day and can never find anything that I want to do. My memory is at a point of unbelief. I feel like I'm elderly. I can't sing anymore, because I can't remember the words. I can't quote scripture anymore because I don't remember the passages. These are two very important parts of who I am, and they're gone. I don't have emotions the way I used to, which was also a big part of me. My main emotion is sadness. I do spend way too much time in bed and I am still so isolated. Really, nothing much has changed in the two years that I've been diagnosed. I still have no energy, don't want to go anywhere or do anything. Today, my husband asked me to come outside with him and just spend some time out there since it is such a beautiful day. Well, I stood there for a min. and then came back in because there is nothing to do. I don't care much for watching tv anymore, and I used to have some "must watch" shows. I don't get on the computer except for maybe a few min. a day because I'm just not interested in it either. Cooking and cleaning seem like such huge chores to me. My house isn't filthy, but it is surely not clean. I used to be so particular about my house being spotless. My kids get into trouble and I just usually turn around and walk away from it, hoping that their daddy will handle it. I just don't want to deal with their behavior. Now, I used to go freakin' nuts when they would get into trouble, so I don't know which is better, but a happy medium would be good. Those are just a few examples. I don't want to live the rest of my life this way. I've tried it "their way" for 2 years and still haven't found a quality life. I am still struggling constantly with my sleep issues. I am set up for a sleep study in a few weeks. Maybe the sleep study will shed some light on some of these problems.
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Phyllis
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« Reply #6 on: February 09, 2009, 07:15:37 PM » |
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It really makes me wonder, what kind of meds do they give Alzheimer patients to slow down the process of them losing their mind. I wonder if it would be beneficial to us?
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high maintenence
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« Reply #7 on: February 12, 2009, 09:54:57 PM » |
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good thought phyllis
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Cathy
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« Reply #8 on: February 13, 2009, 04:11:23 AM » |
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http://www.alzinfo.org/alzheimers-treatment-cognitive.aspDRUGS APPROVED FOR ALZHEIMER'S Brand Name Generic Name When Approved Namenda® memantine 2003 Razadyne, Reminyl® galantamine 2001 Exelon® rivastigmine 2000 Aricept® donepezil 1996 *Cognex® tacrine 1993 I think these ones are mostly used to treat memory problems but don't actually slow the progression of the disease, they just improve quality of life for a while. Behavioural problems are sometimes treated with antipsychotics, such as many of us have taken at one time or another.
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GarryV
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« Reply #9 on: February 17, 2009, 08:10:26 PM » |
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I know a lady and her son is BP and he just takes acupuncture and no meds at all. He is doing fine with that he's pretty normal, like your everyday person the normal ups and downs of normal life. always remember there will always be some ups and downs just not in the way we have them. The only problem with acupuncture it's not cheap.
I miss talking to you, I hope you feel better soon.
Garry V.
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nordicnicki
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« Reply #10 on: February 18, 2009, 09:10:21 AM » |
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i tried acupuncture once combined with chinese herbal medicene.....i improved for a whilse but it didnt last.....hence back with the meds
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bound and tied in emotion but still we fly.losing all my reason cause theres nothing left to blame.
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dragonfly
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« Reply #11 on: March 06, 2009, 01:41:36 AM » |
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guys have you talked to your pdocs about the dose rate of your meds i was like a dumbfounded emotional scarecrow that had no memory or inspiration at all,i didn't even ask my doctor and i slowly increased and decreased on my own to see what was an ok level for me,docs don't know HOW you feel only you do,so high maintenence maybe you need a slightly lower dose .then tell your doctor and they probably give you a tablet thats more suitable for that amount.
you see the epilim that i take first i was on 200mg in the morning and night,slowly that went up to 600 mg morning and night which was what the doc wanted,but i felt the way you described,so i started to knock it down giving it a week or 2 to settle at the new level so i went to 400mg morning night but that wasn't enough istarted episodes within 1 week and it was horrible so i increased back then told my doc and she gave me 500 mg tabs and i take one morn one night and 1000mg a day is just right,istill have memory,emotions etc and i don't fly out of control too much so far no massive episodes just moderate.enough to sort out on my own,i think it's important we have some responsibility to recognise and control our issues,not just get the drugs to do for us.makes us more independent.
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nothing is forever...
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high maintenence
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« Reply #12 on: March 06, 2009, 09:13:58 PM » |
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That's exactly what I'm trying to do is learn to control this on my own instead of relying on these drugs. My doc has given up on the drugs anyway, as she is happy that I am stable to her. She doesn't care that I am not happy with what she thinks is stable. I'm not thrilled with this doc and I'm tired of doctor shopping. I have been dropping one pill at a time slowly, and so far, I don't feel any worse, so I don't need the shit I don't guess.
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